The Cuban Rosalba Castillo, who spoke out on social media on Monday about the lack of medications to treat her son's illness, reported that the medicine has become available thanks to her urging the government of Pinar del Río.
"Was there medication in Pinar del Río or did they perform magic?" wrote the furious mother on Facebook, emphasizing that "when a mother fights for her child with reason, you all tremble."
Your son suffers from Lennox-Gastaut Syndrome, an epileptic encephalopathy that begins in childhood. To treat it, he needs a medication called Levetiracetam, which you have been informed is unavailable.
This event prompted Castillo to challenge the regime: “Once again, I take off the blindfold and stop living in the monster. As long as I have life and strength, I will continue fighting and demanding the rights of my children and many more children. Freedom!”
Five hours before announcing that the government had delivered the medication, Castillo posted on Facebook, stating that the regime was responsible for endangering his son's life: “You knew that the medication would run out tonight, and you made me run around with neurologist Zaldívar and my colleague Marisol, only to come back now with the story that there was medication and my son didn’t get it in time.”
According to this mother, she was informed that she would have to wait a week to obtain the medication, while she warned that government bureaucracy would be responsible for whatever happens to her son's life: “My son's illness doesn’t wait; he needs to take it tomorrow at 9:00 am, and because of your negligence, he won't have it.”
Castillo reported that the cause of the problem lies in a delay in sending some documents to Havana, paperwork that endangers her child: “I don’t know who is going to send the medication, whether it’s the health minister or Miguel Díaz-Canel himself, but the medication is needed immediately.”
Finally, tired of the government's lies, the furious mother warned that she would not stop, "I will not allow myself to stand idly by while the children of this country are treated like they don’t matter at all."
This is not the first time that Castillo has denounced on social media that government bureaucracy endangers the lives of children. He pointed out that he previously had to resort to this platform to demand the medications needed for his niece.
In 2021, this woman highlighted the lack of support from the Cuban government despite being aware of her son's illness. Since then, she has been fighting against the regime's lies.
The situation of this mother is frequently echoed on social media, where individuals find a lifeline and their last hope for addressing their problems amid a suffocating economic crisis.
Recently, another Cuban mother sought help to get her five-year-old daughter, who is suffering from leukemia, out of the country, as there are no resources available in Cuba to treat her.
Yailé Torres Torres explained in a video that her daughter was diagnosed with acute lymphoblastic leukemia, which made it necessary for her to be admitted to the Juan Manuel Márquez Pediatric Hospital in Havana.
In April, the case of a 21-year-old Cuban diagnosed with bone marrow aplasia, who needed medication to manage his illness, prompted an appeal for help on social media.
"Urgent! Help is needed for Leodanis Morales Alemán in Nuevitas, Camagüey," shared Javier Díaz from his Facebook profile, urging the Cuban community and others to assist the young man.
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