The solidarity initiative "Huellas" delivered on Tuesday a washing machine, an air conditioner (Split), and a fan to a seven-month-old baby in Havana, affected by a rare condition known as "God's disease."
Johanna Jolá Álvarez, project leader, informed on Facebook that a Mipyme donated appliances to little Mateo Domínguez Serrano, who suffers from a rare disease called Hematohidrosis, with the aim of improving the quality of life for both the baby and his family.
"'Huellas' will deliver to Mateo's mother absolutely everything collected in our account in order to help and provide quality of life for her little one," said the activist, who announced that "we will soon deliver the rechargeable ventilator that he needs when the power goes out."
Jolá also pointed out that the government communicated with Mateo's mother, informing her that the necessary procedures will be carried out to provide them with housing, "since they are currently living as guests in a friend's house. We hope that this comes to fruition and becomes a reality."
Finally, he thanked the people residing in Cuba and in other countries who support the "Huellas" team in their altruistic and supportive mission.
The day before, the activist alerted on social media about the case, explaining that the baby suffers from a rare disease that she compared to "sweating blood," and noted that the little one requires constant transfusions.
Jolá explained that Mateo's mother, Edisleydis Serrano Bouza, cannot work because she must dedicate all her time to caring for the baby, who requires constant attention due to his illness.
Meanwhile, his father works as a courier to cover the family's expenses and the expensive food that the little one needs.
He also explained that Mateo suffers a lot and needs to be in an air-conditioned environment to avoid bleeding: “What his father earns is not enough to support his family and buy an air conditioner, and a rechargeable fan for when the power goes out.”
In 2020, CiberCuba interviewed the mother of Dianelis González Medina, a Cuban who at that time was 32 years old and had a four-year-old daughter, and whose life was normal until 2017 when she began to cry and sweat blood.
"She has the disease of God," said her mother, referring to her daughter's affliction, a very rare condition mentioned in a biblical passage of Jesus in the Garden of Gethsemane.
The Gospel according to St. Luke states that after the Last Supper, Jesus went to pray on the Mount of Olives and there he was seen sweating blood.
"And being in agony, he prayed more earnestly; and his sweat became like great drops of blood falling down to the ground." (Chapter 22, verse 44).
Suffering from that rare disease made Dianelis González Medina seek support from the international scientific community and offer herself as a volunteer for research on the hematidrosis she was experiencing.
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