A washing machine, an air conditioner (split), and a fan were delivered to a seven-month-old baby in Havana, affected by a rare condition known as "God's disease."
Johanna Jolá Álvarez, leader of the Huellas project, confirmed on Facebook that the appliances were donated to little Mateo Domínguez Serrano, who suffers from a rare disease called Hematohidrosis, with the aim of improving the quality of life for both the baby and his family.
In addition, she said: "'Huellas' will deliver to Mateo's mother absolutely all the funds raised in our account in order to help and improve the quality of life for her little one," said the activist, who announced that "very soon we will deliver the rechargeable ventilator that he needs when the power goes out."
Jolá also pointed out that the government contacted Mateo's mother, informing her that the necessary procedures will be carried out to provide them with housing, "since they are living as guests at a friend's house. We hope that this comes to fruition and becomes a reality."
Lastly, he thanked the people residing in Cuba and other countries who support the "Huellas" team in their altruistic and solidarity mission.
The day before, the activist raised awareness on social media about the case, explaining that the baby suffers from a rare disease that she compared to "sweating blood," and noted that the little one requires constant transfusions.
Jolá explained that Mateo's mother, Edisleydis Serrano Bouza, cannot work because she must dedicate all her time to taking care of the baby, who requires constant attention due to his illness.
Meanwhile, her father works as a messenger to cover the family's expenses and the expensive food that the little one needs.
In addition, he explained that Mateo suffers a lot and needs to be in an air-conditioned environment to avoid bleeding out: “What his father earns is not enough to support his family and to be able to buy an air conditioner, and a rechargeable fan for when the electricity goes out.”
In 2020, CiberCuba interviewed the mother of Dianelis González Medina, a Cuban who was then 32 years old and had a four-year-old daughter, and whose life was normal until in 2017 she began to cry and sweat blood.
"She has the disease of God," said her mother, referring to her daughter's condition, a very rare ailment mentioned in a biblical passage of Jesus in the Garden of Gethsemane.
The Gospel according to Saint Luke states that after the Last Supper, Jesus went to pray on the Mount of Olives, and there he was seen sweating blood.
"And being in agony, he prayed more earnestly; and his sweat was like great drops of blood falling down to the ground." (Chapter 22, verse 44).
Suffering from that rare disease made Dianelis González Medina seek support from the international scientific community and offer herself as a volunteer for research on the hematidrosis she was experiencing.
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