They celebrate the birthday of an orphan girl with neurofibromatosis in Matanzas

Mileysis, a girl with a hereditary disease called neurofibromatosis, celebrated his 13th birthday in Unión de Reyes, Matanzas.

Artists from the Provincial Council of the Performing Arts and the Municipal Directorate of Culture in Unión de Reyes arrived in the Bazarte neighborhood, in the Juan Gualberto Gómez town, in said Matanzas town, to give a nice celebration, with a clown show, puppets, music, dancing, a cake and other sweets.

According to a report published by the profile of Facebook from the local radio station Radio 26, neighbors, school friends, social workers and authorities joined the party, who surprised the birthday girl.

“Ever since they started painting my house I imagined that something was going to happen, but I never thought about such a nice birthday. “I am very happy and I want to thank everyone,” said the girl.

Mileysis lives with her grandmother María Elena Suárez, who has taken care of her since the death of her biological mother, more than eight years ago, says the text that is accompanied by several photos of the festivity.

The little girl wants to “be a teacher and dreams of having surgery before she turns 15.”

Neurofibromatosis is a condition that can cause bone deformities, hypertension and learning problems, the publication also clarifies.

Lately, cases of neurofibromatosis have become visible in Cuba through publications that people and civil society organizations make to publicize these cases.

The non-profit organization “Sembrando Esperanza”, through its profile on Facebook, requested a humanitarian visa so that a Cuban child with this condition can be treated in a health center outside Cuba.

Robert, as the eight-year-old boy was identified, “suffers from a disease called neurofibromatosis type 1. It is a condition that causes changes in the skin, as well as tumors along the nerves of the body. Robert has the tumors on the left side of his neck, putting pressure on his airways, causing him breathing problems,” noted the NGO's publication.

The publication assured that “in Cuba there is no treatment for Robert's condition.”