Relatives of a Cuban child suffering from the disease known as "butterfly skin" are asking for help to obtain the medications that the child needs.
The family, based in Pinar del Río, is requesting urgent help for Liam Vento Garriga, a toddler who is about to turn two years old on July 19.
Liam was born with a chronic genetic disease called Epidermolysis Bullosa, also known as "butterfly skin," which causes blisters to appear on his skin just by scratching or from the friction of clothing, according to a Facebook post from the profile "ElMusk Reeve."
To keep Liam as healthy as possible, they explain, it is necessary to follow strict hygiene measures, as well as provide him with specific medications and supplies to control his illness and improve his quality of life.
This is a rare and uncommon disease worldwide, and in Cuba only around 27 cases are reported, with Liam being the only one in the province of Pinar del Rio.
The family urgently needs Benadryl suspension, gauze, bandages, wound care supplies, antibiotic creams, hydrocortisone cream, petroleum jelly, artificial tears, and liquid laxatives.
The child lives at Isidro de Armas Street #329 apt 5, between Coronel Pozo and Callejón García, Pinar del Río, Pinar del Río, Cuba. Postal Code: 20100.
Also, the contact for Verónica Caré Barrios is available at phone number 5339 4209.
Epidermolysis bullosa is a skin disorder that is genetically inherited and is characterized by the appearance of blisters, ulcers, internal wounds, and can lead to the closure of the esophagus. In individuals with epidermolysis bullosa, the skin comes off upon any contact or friction with a surface.
In the midst of the medication crisis on the island, many families turn to social media to obtain medicines, especially when children are the ones affected. The Cuban regime acknowledges that more than 200 medications from the basic list are missing, attributing the problem to a lack of raw materials to produce them.
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