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Cuban writer and activist Boris Milián Díaz, diagnosed with Spinal Muscular Atrophy since the age of two, sought help on social media to receive medical care and improve his health situation.
Through social media, the activist who has collaborated in campaigns for other patients stated that his situation is urgent due to the visible deterioration of his body caused by the development of osteoporosis and other issues stemming from a lack of specialized care, inadequate living conditions, and insufficient nutrition.
Milián, 38 years old and a resident of Havana, was diagnosed with Spinal Muscular Atrophy at the age of two, which has severely limited his mobility.
Despite her condition, she has managed to study and build a literary career by creating a blog that has received praise from her readers. Activists such as Yordy Battle, , and Yamilka Laffita () have mentioned her on their Facebook accounts.
However, the progressive decline in his health has made daily life more difficult for him. Additionally, in 2023, he suffered a fracture in his left humerus, which further affected his mobility, leaving him in a position of great vulnerability.
The conditions in her environment make access to medical services extremely difficult, as the state of the streets prevents her from going out in a wheelchair, she explains.
It also states that the high transportation costs limit their ability to receive specialized care, putting their life at risk.
Boris also faces recurring respiratory issues, worsened by the kyphosis he suffers from. These conditions have placed him in critical situations on several occasions, relying solely on luck to get through episodes that could have been fatal due to a lack of medical assistance.
Furthermore, he mentions that when he sometimes relies solely on his phone to seek help, the instability of the phone connection and the lack of a reliable mobile network endanger him in case of an emergency.
In light of this situation, the young man has requested help to receive medical assistance in Mexico, a country that is offering him the opportunity to travel and present his blog.
His plan is to take advantage of a travel opportunity to present his literary blog and, at the same time, undergo general medical evaluations and the necessary treatments to improve his quality of life.
However, it lacks the necessary resources to cover travel expenses, medical care, and an appropriate wheelchair for mobility. For this reason, it has set up various fundraising methods:
Account in Mexico:
Beneficiary: Caterina Camastra
Interbank CLABE: 646010206817713709
Bank: Mercado Pago W (or STP)
You can also make payments through Paypal to the email saeeda.bai@gmail.com
It clarifies that the word "Cuba" should not be included in the concept or message, as this could block the funding.
Frequently Asked Questions about the Situation of Boris Milián Díaz and Medical Care in Cuba
Who is Boris Milián Díaz and what is his current situation?
Boris Milián Díaz is a Cuban writer and activist who has been suffering from Spinal Muscular Atrophy since he was two years old. He is currently facing a severe decline in his health due to the lack of specialized medical care in Cuba, which has led to an urgent situation that requires medical treatment abroad.
Why does Boris Milián Díaz seek medical attention outside of Cuba?
Boris Milián Díaz is seeking medical attention in Mexico due to the lack of access to specialized medical services in Cuba to treat his conditions, which include osteoporosis and respiratory issues. The living conditions in his environment make it difficult for him to move and access medical services, putting his life at risk if he does not receive adequate care.
How can we help Boris Milián Díaz receive medical attention?
To assist Boris Milián Díaz, donations can be made through an account in Mexico or via Paypal. It is important not to mention "Cuba" in the transfers to avoid blocking the funds. The donations will help cover travel expenses, medical care, and the purchase of an appropriate wheelchair.
What difficulties does the Cuban health system face according to the provided context?
The Cuban healthcare system is facing serious difficulties, such as a lack of medical supplies, medications, and specialized care, which has led to critical situations for many patients. The situation has worsened since the COVID-19 pandemic, with the regime investing more in tourism than in health, leaving many families with no choice but to seek help abroad.
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