Relatives of a three-year-old Cuban boy asked for help on social networks to get topiramate, one of the many medicines in short supply on the island, necessary for the treatment of tuberous sclerosis that the little boy suffers from.
The minor's aunt turned to Facebook to make the request, given that such platforms have become an effective way to obtain drugs in the face of the complete shortage of pharmacies in the country.
“When a piece of our life is made public, sometimes it is not to show it off, nor to seek glory. The most frequent of the times are out of desperation and need!!! For exhausting the avenues and the cry for help to those close to us! Many do not have relief in their hands and others ignore it because it does not belong to them. Today the digital world allows us to unite voices and arms!” writes the woman.
"Freddy! My nephew! A 3-year-old boy, dependent on several medications to control his disease "tuberous sclerosis." One of the medications I was taking can no longer increase the dose and needs to be changed! To avoid crises! His doctor, an excellent professional and concerned about Freddy, recommends TOPIRAMATO but he is missing! My nephew has more than 10 seizures in a day, sometimes one, sometimes three, but he needs to control himself. Please!!!! Help us find the measurement! “Freddy needs it!” he adds.
In the comments to the publication, several users express their willingness to help her, telling them that they have the medication, which is mainly used in the treatment of epilepsy in both children and adults, migraine, Borderline Personality Disorder (BPD). , as well as in depressive symptoms.
The child's grandmother commented that she had sent the medicine from the United States, but that it would take time to receive them, so she joined the request, emphasizing that the minor needed them "urgently." People were quick to provide help. “Contact me, I can give you 4 vials, they are 25mg, but it can still work for you,” says one of several signs of solidarity.
Others They recommended that relatives contact the comedian Limay Blanco, who usually echoes similar requests and sends medicines from different countries to people in need.
According to a platform specialized in health issues, tuberous sclerosis complex (TSC) is a genetic condition associated with changes in the skin, brain, kidney and heart. Seizures are a common complication, and some TSC patients have learning disabilities. It is estimated that approximately 1 in 6,000 people have TSC and there are approximately 1 million people with TSC worldwide.
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