The Cuban motherMarielys Pérez, a resident of Pinar del Río, asked for collaboration from the community in exile to obtain a medicine that his daughter needsAhittana, 16 months old.
The little girl suffers fromWest syndrome, a severe form of childhood epilepsy. According to the mother, her baby has not woken up for several days due to the worsening of his health and the need to increase the doses of his current treatments.
Ahittana's pediatrician prescribedTopiramate, an anti-seizure medication that is not available in pharmacies in Cuba.
Theemergency situation has led Marielys to publish a message on social networks, asking anyone who may have the drug to donate or sell it to attend her little daughter's treatment.
Besides ofTopiramate, Ahittana requires other specialized care, including apermanent respirator, because his respiratory function is complicated every time he suffers from seizures.
The girl has been admitted tointensive therapy several times, facing multiple respiratory infections and critical complications since he was 8 months old.
Marielys left her direct contact number for any help that may be offered, atphone 56912239. You have created a fundraising campaign on the platformGoFundMe for those who wish to help her.
He invited people to share their message to increase the visibility of this delicate case and enhance collaboration from anywhere in the world, especially from Cuban exile.
This incident highlights the crisis of the health system in Cuba, thedrug shortage vital for the treatment of complex diseases and the constant challenge that many families face in seeking adequate medical care in conditions as severe as those the country is experiencing.
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