The Ministry of Public Health (MINSAP) of Cuba is denying help to a mother who wants to have her son operated on abroad, because there is no solution for his case in the country.
Ana María Sosa Cuesta, a Cuban mother of three minor children, shared on her Facebook wall the story of her 11-year-old son, who has a psammomatoid juvenile ossifying fibroma on his face, a very aggressive benign bone tumor that has completely deformed his face.
According to what he said, it all started with a post-traumatic bruise after a blow he received. The tumor grew quickly, to the point that it reached the orbital floor: a bony structure formed by the maxillary, palatine, and zygomatic bones.
The child was operated on in March at the Juan Manuel Márquez children's hospital in Havana. A month and a half later, they had to take him to the head and neck tumor commission of the National Institute of Oncology and Radiotherapy (INOR) due to the rapid growth of the lesion, which is uncommon but has a high risk of destruction.
"We are explained that there is only one option for the child, which requires a highly complex surgery that includes facial reconstruction with techniques and resources that are not available in our country, so I decided to apply for a humanitarian visa for my son," Ana María explained.
"Today I went to the Ministry of Public Health to ask them for some guidance on a clinic abroad that treats this type of tumor, and the response was that they are not aware of any. How is it possible that our academy does not know of a place anywhere in the world where these treatments are performed," he questioned.
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