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Cuban boy with epilepsy and schizophrenia has been without medication for more than 10 days

The boy also suffers from Cornelia de Lange syndrome, a genetic disease that affects many parts of the body. You need two medications: clonazepan and risperidone.


A Cuban child who suffers from epilepsy and schizophrenia has not taken any medication for more than 10 days.

Cleopatra Pérez, a resident of Havana, identified herself in Facebook as the minor's cousin and asked for help for him.

The boy is called Emmanuel Hernandez and in addition to these two chronic ailments, he suffers from Cornelia de Lange syndrome, a genetic disease that affects many parts of the body.

Emmanuel needs two medications: clonazepam and risperidone.

The first is a drug that acts on the central nervous system and has anxiolytic, anticonvulsant, sedative and mood stabilizing properties.

Risperidone is used to treat schizophrenia. It improves the mood and the way of thinking and behaving of patients, prevents psychosis and helps them sleep.

Cleopatra shared a video in which you can see the poverty in which the boy lives with his family.

"Contact me, I buy them [the medications], they don't have to be given away," he warned.

Cornelia de Lange syndrome is a little-known genetic disorder that causes severe abnormalities in both the physical and intellectual development of the child.

It is a disorder that causes delayed growth, short stature and a small head (microcephaly). On the face they have eyebrows that meet in the middle and on the body they have excessive hair (hirsutism), small hands and feet, and a curved little finger.

Additionally, they suffer from gastroesophageal reflux, seizures, heart defects, cleft palate, intestinal abnormalities, hearing and vision loss, and developmental delay. They have similar behaviors to autistic children.

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