Mothers with children with cystic fibrosis unite in Cuba to demand promised medications, food, and solar panels



Cuban mothers of children with cystic fibrosisPhoto © CiberCuba

Cuban mothers, whose children suffer from cystic fibrosis, have come together to publicly denounce the State's negligence in the face of medicine shortages, the distribution of spoiled food, and the delay of the promised solar panels.

Mothers from the provinces of Santiago de Cuba and Camagüey recorded their complaints from hospitals where their children are hospitalized. This is not the first time that this situation has been raised: it had previously been reported that patients with cystic fibrosis in Cuba were left to fend for themselves  due to the inaction of the authorities.

One of the mothers who contacted CiberCuba, whose daughter Aimé Franco Guerra is 13 years old, warned that the government requested a list of 20 children with cystic fibrosis in Santiago de Cuba to receive solar panels, but only two have been delivered.

"It is essential to expedite the delivery of solar panels, as the government has requested a list of only 20 children from the province of Santiago de Cuba, and only two solar panels have been delivered so far."

This situation adds to previous cases, such as when a mother urgently requested help due to a lack of antibiotics for her son, highlighting a pattern of systematic neglect towards these patients.

Other mothers have emphasized the poor quality of dairy and meat products that arrive at the stores as part of rations every three or four months, and especially the danger that power outages pose to the lives of these children, as many of them need to be connected to medical devices that require electricity in order to avoid drowning. For this reason, they say, solar panels are not a luxury but a matter of survival.

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CiberCuba Editorial Team

A team of journalists committed to reporting on Cuban current affairs and topics of global interest. At CiberCuba, we work to deliver truthful news and critical analysis.