Amanda's mother to Cuban officials: "They are killing my girl"

The mother of the Cuban girl Amanda Lemus Ortiz, who has been waiting almost a year for a liver transplant that she urgently needs, said that health officials on the island are making false promises to help with her daughter's treatment.

This Monday, Amanda's parents had a meeting with officials from the Ministry of Public Health (MINSAP), from which they were not satisfied with the response provided by the authorities.

“I wanted to give my opinion on what happened yesterday,” Amanda's mother, Milagros, said in a video on Facebook shared by Cuban activist Yamilka Lafita, known on social media as Lara Crofs.

“Thank you to all the people who have provided their support and who continue to do so,” was the first message from the distraught mother.

“To you officials, what you are doing, that is a crime. They are killing my girlBecause if you don't want to try to do something for her, making allegations of false representations, turning your back on us, being indolent in the face of our pain and in the face of her pain, because you saw her face, damn it, and she didn't give you pain, you They don't want to help me, He is condemning me to die here”was the strong message that the woman sent.

He also said that “life takes many turns. I only need the support of my people, which until now I have not lacked, and the support of God who is up there.. Mothers understand me. “I am going to continue fighting and my girl is going to continue fighting.”

Hours earlier, Crofs had reported that Amanda had spent the night from Sunday to Monday well, although after giving her medication and having breakfast in the morning she began to show signs of discouragement.

“She was not active and her eyes did not stay open. The doctor was called to tell her about this and they did a gasometry (blood test) and they detected a high decrease in sodium, immediately after which they gave him sodium chloride serum," he explained.

After a fever that reached 39 degrees, the doctors discussed the possibility of taking the minor to intensive care, a decision they rejected out of fear that she would acquire other viruses in that room.

Crofs assured “that after giving him the sodium serum and dipyrone in vials, the fever subsided and he woke up a couple of hours later with more attitude.”

While the doctors observed the little girl and waited for the results of the tests done.

Amanda, residing in Sancti Spíritus, She is not yet two years old, suffers from bile duct atresia and was operated on when she was two months old. with the purpose of extending the wait to perform a liver transplant that will save his life.

However, while his short life deteriorates, the Cuban Public Health authorities have not been able to perform the transplant, despite several promises made in that regard.

Apparently, MINSAP is more concerned that her case is not made public on social networks, and that the desperate mother does not insist on her complaints and requests for a humanitarian visa to operate on her daughter in another country.

The Ministry itself was questioned by dozens of Cubans after issuing a statement given the commotion that Amanda's situation has generated on social networks.

The Provincial Health Directorate of Havana reported on its Facebook that Amanda is admitted to the William Soler Pediatric Hospital, where it has been served since February 2022.

According to the note, during this time her evolution has been monitored by specialists from Sancti Spíritus - where the minor resides - and from the center itself, and "she has been guaranteed the medical resources and supplies necessary for the treatment of her pathology", something that This is contradicted by statements from the mother, who in April reported that they had not been able to perform the transplant "due to the absence of personnel and accessories" at the hospital.

Finally, the MINSAP only alleges that the patient "has a defined indication for a liver transplant" from a living donor, and that "coordinations are being made with specialized institutions in other countries" to provide a solution.