Amanda Lemus Ortiz

Amanda Lemus OrtizPhoto © Amanda Lemus Ortiz

Amanda Lemus Ortiz, the Cuban girl who suffers from biliary atresia, a serious liver disease, has faced numerous challenges in her quest for a liver transplant. Diagnosing her with this condition led her family to mobilize intensely to obtain proper treatment outside of Cuba, due to the limitations of the local healthcare system. Thanks to the active campaign led by the activist Yamilka Lafita and the support of the international community, Amanda received a humanitarian visa and was transferred to Spain, where her father volunteered as a donor for the transplant​.

In Spain, Amanda has undergone several surgeries and treatments, demonstrating remarkable resilience and a strong will to live. Despite the deterioration of her health, her condition has begun to stabilize thanks to the medical care she has received. The Cuban community and people from around the world continue to support her family in covering the expenses associated with her treatment and stay abroad. Amanda's story not only highlights a young girl's fight for her life but also the solidarity of many who have come together to help her.